[LINK] Governments change direction on health e-records
Roger.Clarke at xamax.com.au
Tue Oct 13 10:08:48 AEDT 2009
At 9:30 +1100 13/10/09, Bernard Robertson-Dunn wrote:
>Governments change direction on health e-records
I posted comments in two emails to the privacy list this morning.
On NEHTA and National eHealth Strategy:
- "the original vision of a single e-health record system had been
abandoned in favour of "person-controlled" records that could be
adopted more quickly"
- Five years ago, there was a strong view that there would be an
e-health record for all Australians held on a massive database
somewhere. That's no longer the view.
- undoubtedly people will have an option to choose health records
from a range of sources and their medical information will be
stored in a number of locations
- While the use of patient identifiers may be optional initially,
Mr Fleming said, over time "we expect this to become ubiquitous"
- the role of government ... would be to ensure standards and
privacy rules are all met, but it will probably be necessary to
build an indexing service, as a person's records will likely be
scattered across various providers
- [legislation is necessary, yet] we'll continue down the
development path. For instance, we're working with Medicare
on a group of projects that start linking with and using
identifiers, such as discharge referrals
[This shifts NEHTA in the direction of Criteria 1 and 2 of the APF's
Policy on eHealth Data and Health Identifiers, but it still breaches
On NEHTA and Consumers:
[In this and the acocmpanying interview, Fleming ignored consumers.
[In Australian Public Service jargon, the term 'stakeholders'
*excludes* citizens/consumers, and excludes their representatives and
[Most agencies make some allowance for the public, but Human
Services, Medicare and NEHTA work very hard to keep consumer and
privacy advocates outside the fence.
[This violates Principle 6 of the APF's Policy on eHealth Data and
Health Identifiers, and endangers all of the Criteria:
Roger Clarke http://www.rogerclarke.com/
Xamax Consultancy Pty Ltd 78 Sidaway St, Chapman ACT 2611 AUSTRALIA
Tel: +61 2 6288 1472, and 6288 6916
mailto:Roger.Clarke at xamax.com.au http://www.xamax.com.au/
Visiting Professor in the Cyberspace Law & Policy Centre Uni of NSW
Visiting Professor in Computer Science Australian National University
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