[LINK] Centralised IHI architecture ...

[Marghanita da Cruz]

Firstly, Roger (and Stephen),

As my postings are rejected by the privacy list, please do
me the courtesy of not cross posting.

Secondly, what I was pointing out is that some of the
information you identified as being more widely
available  (ie log of visits to pharmacist, gp, dentist
etc) becomes available - when you pay by credit card.

Also, people participating in studies such as these may also
not be aware of the extent of the medical information about
them currently provided to researchers:
> DO you have arthritis, diabetes, heart disease, a respiratory condition, high blood pressure or chronic pain?
> 
> Arthritis NSW and Hawkesbury-Hills Division of General Practice and the NSW University research centre for primary health care and equity are running a study, and the organisers want to test the effectiveness of a new program called Moving On, a self-management program for people with long-term illness. 
<http://cumberland-courier.whereilive.com.au/news/story/study-aims-to-ease-the-pain-of-hills-residents/>

Marghanita

Roger Clarke wrote:
> At 16:12 +1100 15/3/10, Marghanita da Cruz wrote:
>> If you were concerned (and I would imagine there may be
>> things that you would like to be kept private). I would
>> suggest you should pay cash and refuse to be identified.
> 
> Let me check that I understand your proposition, Marghanita.
> 
> 1.  everyone who ever has any kind of transaction they want to keep private
> 
> 2.  in respect of every such sensitive transaction
> 
> 3.  has to pay the whole amount, without refund
> 
> 4.  and in many cases has to pay large and even very large sums
> 
> 5.  for services that they've already paid for through the tax system
> 
> Otherwise the data will be linked into a virtual national database, 
> that is accessible by 600,000 people, and that includes an entry in 
> the hub-database that alone shows enough meta-data for people to draw 
> inferences.
> 
> And note that this is all new, and not a feature of the current system.
> 
> 


-- 
Marghanita da Cruz
http://ramin.com.au
Tel: 0414-869202