[LINK] Centralised IHI architecture ...

[Roger Clarke]

At 17:12 +1100 15/3/10, Marghanita da Cruz wrote:
>As my postings are rejected by the privacy list, please do
>me the courtesy of not cross posting.

Apologies.  (The thread is running in both fora, and I'm posting to 
both without thinking about it).

The ideas are important.  If you'd like me to post anything to the 
privacy list on your behalf, I'd be pleased to do so.


>Secondly, what I was pointing out is that some of the
>information you identified as being more widely
>available  (ie log of visits to pharmacist, gp, dentist
>etc) becomes available - when you pay by credit card.

It's actually *narrowly* available, i.e. a pharmacist can see their 
log, but no-one else can;  ditto a dentist;  and ditto the credi-card 
company.

The IHI and singular-EHR that NEHTA is devising bundles it all 
together, indexes it, and makes the index and the complete suite of 
databases available to vast numbers of people.


>Also, people participating in studies such as these may also
>not be aware of the extent of the medical information about
>them currently provided to researchers:
>>  DO you have arthritis, diabetes, heart disease, a respiratory 
>>condition, high blood pressure or chronic pain?
>>  Arthritis NSW and Hawkesbury-Hills Division of General Practice 
>>and the NSW University research centre for primary health care and 
>>equity are running a study, and the organisers want to test the 
>>effectiveness of a new program called Moving On, a self-management 
>>program for people with long-term illness.
><http://cumberland-courier.whereilive.com.au/news/story/study-aims-to-ease-the-pain-of-hills-residents/>

Very much agreed.

___________________________________________________________________

>Roger Clarke wrote:
>>  At 16:12 +1100 15/3/10, Marghanita da Cruz wrote:
>>>  If you were concerned (and I would imagine there may be
>>>  things that you would like to be kept private). I would
>>>  suggest you should pay cash and refuse to be identified.
>>  Let me check that I understand your proposition, Marghanita.
>>  1.  everyone who ever has any kind of transaction they want to keep private
>>  2.  in respect of every such sensitive transaction
>>  3.  has to pay the whole amount, without refund
>>  4.  and in many cases has to pay large and even very large sums
>>  5.  for services that they've already paid for through the tax system
>>  Otherwise the data will be linked into a virtual national 
>>database, that is accessible by 600,000 people, and that includes 
>>an entry in the hub-database that alone shows enough meta-data for 
>>people to draw inferences.
>>  And note that this is all new, and not a feature of the current system.
>>
>
>
>--
>Marghanita da Cruz
>http://ramin.com.au
>Tel: 0414-869202

-- 
Roger Clarke                                 http://www.rogerclarke.com/

Xamax Consultancy Pty Ltd      78 Sidaway St, Chapman ACT 2611 AUSTRALIA
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Visiting Professor in the Cyberspace Law & Policy Centre      Uni of NSW
Visiting Professor in Computer Science    Australian National University