[LINK] Open source health records
jwhit at melbpc.org.au
Tue Apr 28 21:03:14 AEST 2009
At 01:07 PM 28/04/2009, Stephen Wilson wrote:
>I think the constructive way forward is to establish common ground with
>regards to what everyone would agree are worthwhile, feasible outcomes
>of shared EHR, and then attempt to derive (and debate where necessary)
>proper privacy controls and policies.
Google Nehta. There is lots of info there. It's been going on for the
last 2-3 years. and it's still not finished. and don't get me started
on the millions already spent.
And if you want to know when a lot of this started, check back in the
late 1990s. I worked on a project in Southern Health [was Southeast
Health then] in Victoria to do info transfer through an integrated
care model. It NEVER worked for a whole lot of reasons. There was a
report on the web about that one somewhere.
Here's a book chapter for you:
Iacovina, L., Mendelson, Danuta and Paterson, M. 2006, Privacy
issues, health connect and beyond, in Disputes and dilemmas in health
law, Federation Press, Annandale, N.S.W., pp.604-621.
As Bernard said, this stuff isn't new, but it's so damn hard, no one
has accomplished it yet in all its 'glory'. In fact, every discussion
I have about it exposes more about the range of meanings in any
individual's mind about what it even *is*. If you know the fable
about the blind men and the elephant, you'll get the idea.
And as for open source, I'm not sure that's such a wise idea. I want
the tightest security system possible.
As to how to proceed to solve the difficulties [Steve Wilson's
question], probably in modules. Create the most beneficial projects
first. Show that the 'system' can be trusted. Show that the patient
and their families are respected in the process. Keep the bloody
public research interests out of it until the primary purpose issues
are solved. Frankly, if that one thing happened, there could be much
quicker progress, but they keep wanting population data way beyond
what is necessary. Governance is critical to all of this.
Nehta is focusing on standards. Heck, just getting vocabulary
consistent would help. They're getting there. They are also working
on messaging standards.
[who has been on panel after panel and meeting after meeting on this stuff]
Melbourne, Victoria, Australia
jwhit at janwhitaker.com
Our truest response to the irrationality of the world is to paint or
sing or write, for only in such response do we find truth.
~Madeline L'Engle, writer
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