[LINK] My letter to the local paper
kauer at biplane.com.au
Sun Jul 22 17:22:53 AEST 2018
Hullo. I hope this crosspost will be forgiven. I am seeking input on a
proposed letter to my local paper. As best I can make it, it is
factually correct. I chose not to take issue with the purported
benefits, and only to point out the major risks.
Opt out of My Health Record
The My Health Record system is founded on a betrayal of trust. The
Government got it approved as an opt-in system. Hardly anyone opted in,
so they changed the rules and made it opt-out instead.
You have until mid-October to opt out. This is the only chance you will
ever get. After that, the best you will be able to do is "cancel" your
record, which won't delete it. It will still be in the system and at
Hundreds of thousands of people will have
access to your record. Over the years, that will become millions. You
cannot control who uploads things into your record. You have no right
to check what is uploaded into your record. You cannot control who sees
your record. You cannot find out who has accessed your record, nor what
they do with it. You cannot correct or remove documents from your
The Government has made it very clear in the legislation that it
intends to make your medical data
available for commercial use and that your medical data may be used
against you by agencies such as the police and the ATO. The Government
says that will never happen - but the actual legislation says it can.
Maybe you trust the current government. But do you trust every future
Government for the next hundred years? Because that's how long they
plan to keep it.
This is not a party-political issue. Both sides seem fine with the idea
of defaulting all Australians into a huge, poorly-controlled, poorly-
protected, poorly curated database of dubious medical benefit.
The only way to protect yourself is to opt out. Seriously - do it now.
Karl Auer (kauer at biplane.com.au)
GPG fingerprint: A0CD 28F0 10BE FC21 C57C 67C1 19A6 83A4 9B0B 1D75
Old fingerprint: A52E F6B9 708B 51C4 85E6 1634 0571 ADF9 3C1C 6A3A
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